Caz Smith knows only too well the effects living with epilepsy can have.
Diagnosed at the age of 18, she has suffered seizures throughout her life and knows how scary that can be for the people around her.
Recalling one ‘episode’ she said: “My husband said I asked him who he was. I don’t even remember that happening.”
In a bid to help other people diagnosed with epilepsy and their friends, family and carers, Caz has started up a monthly coffee and chat support group for Epilepsy Action in Skegness.
Caz, now 31, said: “When I was first diagnosed I used to go to an Epilepsy Action support group in Stoke-on-Trent where I lived. When I moved to Skegness I was looking for another group as they helped me so much. I was told the ‘nearest’ was Peterborough so I decided to set one up here myself.
“I know how having epilepsy can affect you.
“I am on medication but at one point I went through a period of stress which sent my epilepsy out of control and I could not go out on my own.”
She hopes that the drop-in support group will help people affected by epilepsy come together in Skegness in an informal setting to support each other and share experiences.
According to Epilepsy Action around one in every 100 people in the UK alone are affected by epilepsy and 87 people are diagnosed with the condition every day.
The first drop-in event for the support group will be held on Wednesday, March 25, from 12noon-2pm at Sea View family pub, North Parade, Skegness.
Regular meetings will be on the last Wednesday of each month.
Call Caz on 07955 426593 for more details.